BOOM.

YOU GUYS!!

I am very excited to share this with you:  See Through Stories

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You see, I’ve had several life ties to Alzheimer’s disease: personal (my grandma was diagnosed), professional (I worked as a CNA on an dementia unit), and academic (this was my research topic for my dissertation). In grad school I had this idea to start a story-telling project with people diagnosed early onset and well… I ACTUALLY MADE THE IDEA HAPPEN. Or got it started, anyway. And that’s the hardest part, right?

This has been slowly growing over the last few months and today I am officially launching the website for See Through Stories. There are only two features so far, but I’m hoping that all of you will help me spread the word so I can make connections to more people interested in taking part. I think if there can be anything beautiful about having dementia, it might be that it forces people to live fully present in the moment. I think we could all learn a little from that.

I don’t know if this will last one year or 50 years. I don’t know if this will stay a project or become and organization. I don’t know if this will just feature people where I live or if I’ll be fortunate enough to hear the stories of people with dementia all over the globe. I don’t know if I’ll work solo or if I’ll be lucky enough to form a dream team. There’s a lot I don’t know.

It’s new. It’s figuring itself out. I’m going to be patient and present with it. No matter what it becomes or doesn’t become, I’m proud of myself for at least seeing the idea through. And I expect that I’ll enjoy every bit of the work immensely because it has me all like: damn, people are beautiful.

 

Love,
Taylor

Extra special thanks to:

The Alzheimer’s Association in Des Moines for connecting me to the wonderful people I’ve interviewed so far // My family, for literally everything // Ryan, who helped get this off the ground from every technical standpoint and was my brainstorming partner// Sarah, Rachel, and Lewis for consistently insisting I must do this, from the very beginning // Andrew, for being my sounding board.

 

So This is Happening

I’ve been one busy lady. Good busy. But busy nonetheless. I feel like I’m teetering on the edge of mental breakdown some days, but soaring high on others. I’m finding it hard to muster the energy to do the things I want to do when I’m done doing the things I need to do. And trying to remember that I get to do it all.

But OK, so this is what’s happening…

I took a road trip to the mitten of the United States last weekend with my friend Kory. Between cafes, breweries, ice cream parlors, and bakeries…we just ate and drank our way through Grand Rapids with Miss Bailey. That city is dope. And so is Bailey. I also got to see my godparents- Dave and Maria and little James, the newest additon to their family. They spoiled Kory and I with an amazing dinner at Terra, a farm to table restaurant. I tried mussels for the first time and I didn’t hate it. After saying peace to GR, we ventured to Detroit to complete the mission of the entire trip: to see one of my favorite paintings in person. We perused the Belle Isle Conservatry, bought succulents at Eastern Market, and stumbled upon a Luge race downtown (which is possibly the most quiet and bizzare sporting event to see up close). A personal highlight was making our way through the midevial art section of DIA via Snapchat and creating these:

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Diego Rivera mural in the DIA
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YAY for used bookstore steals

+ I had the opportunity to play papparazzi at the Alzheimer Association’s Conference last week. The Alzheimer’s Association in Des Moines has been a huge support in the project I am working on and they have asked me to be on a project committee that creates social engagement events for patients and their caregivers. I am so pumped to be a part of that!

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You should sign up for The Walk to End ALZ 🙂

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This is crazy.

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My Fridays-Sundays are spent with the DMCW, serving up food and loving our neighbors. I am unendingly appreciative that I get to be a part of this community, which is about equal parts insanely beautiful and hella challenging. But being here keeps me grounded in my values and beliefs about how life is meant to be lived and shared. For every absence I observe, there is an abundance to be experienced. One thing the DMCW does is serve breakfast and give out Whole Foods donations on Saturday mornings at Trinity Church before serving lunch at the Dingman House at noon. If anyone is interested in volunteering or cooking a meal, hit me up!

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My housemate Al and Justin…two of my favorite dudes.

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I’m nannying for one more month. Still applying for jobs and becoming increasingly depressed and frustrated by everything. BUT I’m looking forward to being a bridesmaid for one of my dearest friends in June and to being in Edinburgh for a TBD amount of time this summer. Also, I’ve taken up kickboxing again which has been a sanity saver and makes me feel like a total badass.

Uppercut. Hold the follow through.

Love,

Taylor

7 Things Sunday

One. It was really fun to have the ‘rents in the ‘burgh this past week. If you are lucky enough to know them personally, then you know that one thing they do very well is dinner. It is never a quick thing. It is an event. This is something I have especially missed about them: the way they engage in sitting around the table, filling stomachs and emptying wine glasses, laughing and sharing good conversation for hours late into the night. I was definitely thankful to partake in a lot of that while they were visiting. I enjoyed being able to show them some of my frequents in the city and to have new adventures with them, too! My dad introduced Monty Python and the Holy Grail to Madison and I at a very young age and it has been quoted in our household for years. Therefore, its no surprise that I particularly loved the day trip we took to Doune Castle just outside of Stirling where most of Monty Python and the Holy Grail was filmed. The audio tour was equally historic and hilarious. Plus, it completely made my day that they had coconut halves available so you could gallop around and re-enact scenes. IMG_9450 IMG_9326 IMG_9332 IMG_9338 IMG_9344 IMG_9358 IMG_9411IMG_9436Two. I had two other visitors I wasn’t expecting to see in these parts. It had been yearssss since I hung out with these gents. It was great to bro out, booze it up, and reminisce about loads of amazingly awkward adolescent memories. 11406122_634871980326_3782550340534631469_o If you had told me that the guy I went to prom with when I was 14 would be drinking a 1968 scotch with me in Scotland ten years later…(and that he would still be wearing a Postal Service t-shirt… ;))IMG_9535 Yes, this is a cocktail served in a light bulb…11406205_634872015256_6009199173115826407_o Three. Speaking of adolescence– this made me crazy nostalgic: IMG_9457 Four. It was 70 degrees for three days in a row this week!! EXCITEMENT. You don’t understand how big of a deal that is. I was working two of the three days so I didn’t get to enjoy it to the fullest, but just one day of being in the sunshine and my summertime nose freckles are out and ready to party. Must…get…vitamin…D… IMG_9325Five. The dissertation writing is coming along very slowly. I’ve honestly never been a procrastinator. Until now. I think its a cumulation of things, but I’m mostly just feeling burnt out. Meh. If you have writing a MA thesis before and have any tips or advice, please feel free to share the love. I had originally been planning on doing a feasibility study for an organisation called Arts in Healthcare, but this fell through and left me scrambling to think of something else. I had a classmate who mentioned a project that the Scottish Chamber Orchestra was doing with dementia patients, which I found interesting. A few days later I was walking through the library and saw a book on the new stock shelf that caught my attention because the cover looked cool (I always judge books by their covers) and it ended up being about architectural design and dementia. The next day I was walking to class and the Alzheimer Association van was parked outside with an information table. At this point I’m thinking, Ok, ok…I can take a hint. I ended up chatting to the representative and finding out that two theatres in Edinburgh had received grants to make their venues dementia-friendly and that Edinburgh as a city itself had this whole policy strategy to become dementia-friendly. It felt like something was starting to click– especially when I thought back to how I used to be a CNA in a dementia care facility, I’ve worked in hospitals, I’ve done art therapy with elderly people, and my grandmother had recently been diagnosed with Alzhiemer’s. During my internship at the gallery in the Royal Botanic Gardens, I was discussing all of this with the curators and they told me that the man in charge of outreach for the gardens was heading up a dementia-friendly programming collaboration between all the national collections in Edinburgh (The Royal Botanic Gardens, The National Library, The National Galleries, The National Museum), so I went next door to talk about this with him and he connected me with more people to talk to. Cha-ching.

All of this has accumulated into me researching how arts organisations can be dementia-friendly, which more or less has to do with training, programming, and accessibility/environmental structure. Its been interesting to inquire about who/what informs the understanding of ‘dementia-friendly’ and how that is then manifested. I’m still in the middle of it all, but I’m continually fascinated by what I’m learning and inspired by what cultural organisations are doing to raise awareness and ensure that their venues and staff are safe, welcoming, and both confident and thoughtful in their communication. It really is so much about being thoughtful and putting yourself in someone else’s shoes.

I attended the Dementia Awareness Conference in Glasgow a couple of weeks ago and the theme this year was ‘Global Progress, Local Impact’. It was amazing to hear from people in Japan, Germany, Norway, Ireland, and the UK about what is happening in response to this health issue. It was said that, “Dementia is the global health time bomb.” In the next 15 years the number of people living with the condition is expected to reach over 75 million and over 65% of those people will be living in developing countries. I loved hearing about what Join Dementia Research is doing to encourage people to participate in studies that create a discussion between the public and the researchers on an equal playing field. We need to understand what happens to the brain before someone is diagnosed, which means we need to be studying younger people right now and following them through the coming years. Secondary prevention is necessary for research and reducing risk of further decline or full blown development. We go for things like breast and cervical cancer screenings. We should do the same for brain health. And since such a large percentage of people affected are living in developing countries, we must focus efforts there on education, awareness, and diagnosis that doesn’t involve the use of MRI/PET scans which are likely unavailable.

I don’t know what my career trajectory will look like after I graduate. This could potentially be a big part of it, a tiny part of it, or no part of it. But I do know that I will continue to keep talking about it and doing what I can to support progress– we tackle stigma through social action. 11108950_1615766365376983_5806580678071055583_nSix. Like many, many Americans, my sister loves country music and she’s very persistent in sending me songs. I admire her determination to convert me to fandom but you see, I do love country music. I just don’t love it in the sense that I want to listen to it. Ever. I love it because it is one of the most ridiculous things in existence. Just the other day, this showed up on my Spotify and I died. God bless ’em. IMG_9536Seven. I joined Twitter yesterday if you want to follow. I was really sad that @Tayrannosaurus @Taybaybay and @TweetsbyTay were already taken. I was just too late to the name game.  Screen Shot 2015-06-14 at 00.08.08Love,

Taylor

PS: These are something to behold. Best thrift purchase I’ve made in a long time. #bibbabe #dungareehungry #overalldoll IMG_9557