You see, I’ve had several life ties to Alzheimer’s disease: personal (my grandma was diagnosed), professional (I worked as a CNA on an dementia unit), and academic (this was my research topic for my dissertation). In grad school I had this idea to start a story-telling project with people diagnosed early onset and well… I ACTUALLY MADE THE IDEA HAPPEN. Or got it started, anyway. And that’s the hardest part, right?
This has been slowly growing over the last few months and today I am officially launching the website for See Through Stories. There are only two features so far, but I’m hoping that all of you will help me spread the word so I can make connections to more people interested in taking part. I think if there can be anything beautiful about having dementia, it might be that it forces people to live fully present in the moment. I think we could all learn a little from that.
I don’t know if this will last one year or 50 years. I don’t know if this will stay a project or become and organization. I don’t know if this will just feature people where I live or if I’ll be fortunate enough to hear the stories of people with dementia all over the globe. I don’t know if I’ll work solo or if I’ll be lucky enough to form a dream team. There’s a lot I don’t know.
It’s new. It’s figuring itself out. I’m going to be patient and present with it. No matter what it becomes or doesn’t become, I’m proud of myself for at least seeing the idea through. And I expect that I’ll enjoy every bit of the work immensely because it has me all like: damn, people are beautiful.
Extra special thanks to:
The Alzheimer’s Association in Des Moines for connecting me to the wonderful people I’ve interviewed so far // My family, for literally everything // Ryan, who helped get this off the ground from every technical standpoint and was my brainstorming partner// Sarah, Rachel, and Lewis for consistently insisting I must do this, from the very beginning // Andrew, for being my sounding board.
I’ve been one busy lady. Good busy. But busy nonetheless. I feel like I’m teetering on the edge of mental breakdown some days, but soaring high on others. I’m finding it hard to muster the energy to do the things I want to do when I’m done doing the things I need to do. And trying to remember that I get to do it all.
But OK, so this is what’s happening…
+ I took a road trip to the mitten of the United States last weekend with my friend Kory. Between cafes, breweries, ice cream parlors, and bakeries…we just ate and drank our way through Grand Rapids with Miss Bailey. That city is dope. And so is Bailey. I also got to see my godparents- Dave and Maria and little James, the newest additon to their family. They spoiled Kory and I with an amazing dinner at Terra, a farm to table restaurant. I tried mussels for the first time and I didn’t hate it. After saying peace to GR, we ventured to Detroit to complete the mission of the entire trip: to see one of my favorite paintings in person. We perused the Belle Isle Conservatry, bought succulents at Eastern Market, and stumbled upon a Luge race downtown (which is possibly the most quiet and bizzare sporting event to see up close). A personal highlight was making our way through the midevial art section of DIA via Snapchat and creating these:
+ I had the opportunity to play papparazzi at the Alzheimer Association’s Conference last week. The Alzheimer’s Association in Des Moines has been a huge support in the project I am working on and they have asked me to be on a project committee that creates social engagement events for patients and their caregivers. I am so pumped to be a part of that!
+ My Fridays-Sundays are spent with the DMCW, serving up food and loving our neighbors. I am unendingly appreciative that I get to be a part of this community, which is about equal parts insanely beautiful and hella challenging. But being here keeps me grounded in my values and beliefs about how life is meant to be lived and shared. For every absence I observe, there is an abundance to be experienced. One thing the DMCW does is serve breakfast and give out Whole Foods donations on Saturday mornings at Trinity Church before serving lunch at the Dingman House at noon. If anyone is interested in volunteering or cooking a meal, hit me up!
+ I’m nannying for one more month. Still applying for jobs and becoming increasingly depressed and frustrated by everything. BUT I’m looking forward to being a bridesmaid for one of my dearest friends in June and to being in Edinburgh for a TBD amount of time this summer. Also, I’ve taken up kickboxing again which has been a sanity saver and makes me feel like a total badass.